Table 1

Search strings used in the targeted literature search

Search strings used in the targeted literature search
Patient-reported outcomes and quality of life(“quality of life” or “quality-of-life” or QoL or disability or “patient reported outcome*” or “patient-reported outcome*” or PRO or “Quality adjusted life year*” or QALY or “Quality-adjusted life year*” or ((activit* adj2 daily adj2 living) or prefer* or satisfact* or questionnaire or scale or score) or (burden adj5 (societ* or parent* or caregiver or humanistic))).mp.
Diseasepresbyo*.mp.