The European Cornea and Cell Transplantation Registry (ECCTR) is a multi-national database for corneal transplantation surgery. ECCTR is co-founded by the Health Programme of the European Union, the European Society of Cataract and Refractive Surgeons (ESCRS), EuCornea and the European Eye Bank Association (EEBA). Objectives of the database are to ascertain donor tissue availability, and to analyse the safety, quality, and efficacy of corneal transplantation based on real-world outcomes including patient reported outcome measures.
We describe a web-based system with a software interface for the input and output of data relating to eye banking and corneal transplantation surgery. Output of reports or export of own data is available on the web. Data is anonymous to all users, with the exception that reporting eye banks and surgeons have access to their own data. The system was designed to allow both manual input of data via the web and transfer of data from national registries, eye banks, and electronic medical record systems.
Established in 2016, the ECCTR has collected data on more than 13,000 transplants from 15 European countries—including information on the recipient, donor and eye bank processing, transplant procedure, and two-year follow-up with graft survival and failure and patient-reported outcome measures (PROMs). We present the key findings from the registry and invite eye banks to engage with the registry.
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