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  • Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: ‘That is exactly what I have been missing’

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Genetics
Original research
Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: ‘That is exactly what I have been missing’

Authors

  • Pernille Axel Gregersen Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, DenmarkDepartment of Clinical Genetics, Aarhus University Hospital, Aarhus, DenmarkCentre for Rare Disorders, Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  • Mikkel Funding Department of Ophthalmology, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  • Jan Alsner Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  • Maja H Olsen Survivorship and Inequality in Cancer, Danish Cancer Society Research Center, Copenhagen, Denmark PubMed articlesGoogle scholar articles
  • Jens Overgaard Department of Experimental Clinical Oncology, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  • Steen F Urbak Department of Ophthalmology, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  • Sandra E Staffieri Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, AustraliaOphthalmology, Department of Surgery, University of Melbourne, Melbourne, Victoria, AustraliaDepartment of Ophthalmology, Royal Children's Hospital, Parkville, Victoria, Australia PubMed articlesGoogle scholar articles
  • Stina Lou Defactum – Public Health & Health Services Research, Aarhus, DenmarkCentre for Fetal Diagnostics, Aarhus University Hospital, Aarhus, Denmark PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Pernille Axel Gregersen; perngreg{at}rm.dk
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Citation

Gregersen PA, Funding M, Alsner J, et al
Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: ‘That is exactly what I have been missing’
BMJ Open Ophthalmology 2021;6:e000760. doi: 10.1136/bmjophth-2021-000760

Publication history

  • Received March 8, 2021
  • Accepted August 18, 2021
  • First published September 12, 2021.
Online issue publication 
March 14, 2024

  • Supplementary Data

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

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© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.